On Rare Disease Day 2023, Form Bio joined forces with Beyond Batten Disease Foundation for a live discussion on the promise and challenges of rare disease research and development. While the world of novel therapeutics is ever evolving, there are serious hurdles to affecting life-changing care for rare disease families.
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The current state siloed process for diagnosis, testing, and treatment facing rare disease families.
Considerations for updates to regulatory and research and development proceedings to benefit treatment and cure pipelines for rare disease.
Difficulties facing rare disease families in accessing novel therapeutics, and recommendations for future state policy.
Q+A with our speakers
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Claire is Form Bio's Chief Strategy Officer where she focuses on strategic opportunities for the advanced applications of the platform. Her career has included work in biotech venture investing, entrepreneurship, and translating scientific discovery into practical solutions. Claire holds a BS in Biomedical Science from Texas A&M University and a PhD in Immunology and Genetics from Duke University.
Craig Benson is the Chairman and Founding Director of Beyond Batten Disease Foundation and is a member of the Board of Directors for Batten Disease Support & Research Association. Craig has been the CEO and Managing Director of Callaway Partners, LP since 2004. Benson was CEO and President of Rules-Based Medicine Inc. (later MyriadRBM, Inc), a life sciences/diagnostic company, from January 2002 through December 2013, after directing its spin-off from Luminex Corporation (NASDAQ:LMNX).
